This morning, at an hour with which we’re not very familiar, before even the weather had decided on its choice of wardrobe, Mr D and I stumbled into our car and headed south to the Scottish Parliament in Edinburgh. We arrived at the top of the Royal Mile:
‘Shall we park here and walk down or should we try to get a bit closer?’
‘Here’s fine, it can’t be that far, we’ve got plenty of time.’
Turns out it’s called the Royal Mile for a reason. By the time we arrived, our half hour surplus had dwindled to minutes and security took care of those. At least the sun was out.
We were there to show our support for a Private Member’s Bill launched by MSP Anne McTaggart – Transplantation (Authorisation of Removal of Organs etc) (Scotland) Bill. The bill proposes that Scotland move from an opt-in system of organ donation to a ‘soft opt-out’ one. In other words, rather than signing up to be a donor, it would assume everyone to be one unless they have specifically registered their wish not to be. The soft opt-out also allows for the family or a registered proxy to object if they know or have reason to believe that their loved one did not want their organs to be donated, or if they themselves are against it.
Regular readers of my blog will know that I received a heart transplant 18 months ago on Christmas Day. I was one of the lucky ones. Every day, people across the UK, die whilst on the list, waiting for a transplant. In Scotland, public consultation suggests that more than three quarters of the population are in favour of organ donation yet less than half are on the donor register. The Transplantation Bill would help bridge that gap.
But for the kindness of a stranger and the courage of their family, I wouldn’t be here. It’s impossible for me to express how grateful I am. My heart transplant didn’t just save my life, it gave me a future that as little as two years ago, I could only have dreamt of. A future where climbing stairs, walking to the shops, sleeping on my back with just one pillow, bending to tie my shoes, getting out of the shower unaided, dancing at my wedding, and all the other things I never believed possible, became a reality.
Over the last year and a half, I’ve met several people who’ve also had heart transplants and all of them not only appreciate the value of the gift they were given, they also treasure every moment of their new life. They know what it cost someone for them to be alive and they have no intention of squandering it.
I don’t pretend to understand the bureaucracy involved in passing a bill into law. I do know that, at this stage, it’s important that as many MSPs as possible lend their support to it. To help this process along, if you agree with the bill, you could contact your MSP and ask if they have added their name to it and if not, if they would be willing to do so.
It’s a cliché but life really is short. Organ donation not only saves lives it transforms them – the aim of the new bill, if passed, is to improve the chances of a transplant for more people in Scotland. In Wales, the law is in the process of being changed in this way and in countries around the world it already is so. Hopefully, Scotland will soon follow.
Find out more on the Opt for Life campaign, led by the Evening Times, here.
For those interested in reading some of my own writing, The Jungle Rock, is the extract based on my own experience on the urgent transplant list, as published in the Next Review. It forms part of my unfinished LPoW (Longer Piece of Writing).
*** The photos are of my friend Brian with a self-portrait painted from a photo his wife Bibo took whilst he was in ICU immediately after his transplant, and of Bibo with part of one of her sculptures – a bronze cast of her face. Both are part of their exhibition, The Shared Heart, which I wrote about in my last blog.